“Be kind, for everyone you meet is fighting a hard battle.”Ian Macleren
I recently participated in the National Psoriasis Foundation and Healthline’s #PSelfie Photo Campaign. It is a wonderful social media initiative launched to support and empower those who are living with psoriasis.
I shared the below photo and received a negative response about it being a “joke” and that I’m not someone who “really has it.”
I’ve had varying degrees of psoriasis flares for more than half of my life. My skin has been 90% covered in spots and too uncomfortable to wear clothes. On the other hand, there have also been times where I’ve have complete clearance. Usually it’s somewhere in between and changes often. I’ve recently started to flare up again after being 95% clear throughout my pregnancy. This snapshot is currently what’s happening to my skin and it’s my experience to share.
Living with psoriasis isn’t a competition
True. It’s not the worst it has ever been, but living with psoriasis isn’t a competition!
Everyone has a unique experience with their psoriasis which gives them their own story to tell.
I made a decision to share that particular image because those spots were brand new. Hot off the inflammation presses!
These spots appeared overnight and they took form of the Little Dipper – which is kinda fun. I chose not to share the spots on the more intimate parts of my body. Or the flare that appeared on my healing c-section scar because of the Koebner Phenomenon. I didn’t share the ones on the parts of my post-baby body because I’m not quite ready to bare to the world. It was important to me to participate in the campaign because it creates awareness showing pictures of what real psoriasis looks like. I have guttate psoriasis, therefore my spots appear much smaller. But they are all over my body and every single one is sore and uncomfortable.
I know my own personal experiences and struggles with psoriasis, so I can brush off the insensitive comment. However, someone else may be discouraged to share and openly discuss their experiences if they think someone will have a negative response. Sharing your story can bring you confidence and allows you to connect with a community who understands what you’re going through. We want more people to be connected and supported because it’s common for people living with psoriasis to feel alone and disconnected.
I ask you all to be kind and supportive because sometimes all you’re getting is a small glimpse into someone’s personal journey.